Birt-Hogg-Dub Family Alliance

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Our content has moved to our new website. Please visitwww.BHDSyndrome.org.

www.BHDSyndrome.orgcontains additional, and updated, information about the Birt-Hogg-Dub Syndrome, research and important events.

The Second Birt-Hogg-Dub Symposium will be held in Washington, DC on April 22, 2010. We hope to see as many BHD families and patients as possible. We have planned a full day for all family attendees. The day will include joint sessions with all other attendees, as well as some break out sessions just for families.

The cost of the day will be $50 for family members; we are subsidizing the cost of registration.



The program is as follows:

Introduction Dr. Laura Schmidt
all will attend
Featured speaker Dr. Berton Zbar
all will attend
Break out session Joyce Graff, VHL Alliance
families
Featured speaker Frank Mc Cormack
all will attend
Coffee break
Featured speaker Lindsay Middelton
families
Lunch
Invited speaker Joyce Graff, VHL Alliance
all will attend
Clinical abstracts
all will attend
Coffee
Break out session
families
There are hotel rooms available through the Birt Hogg Dube syndrome website. We can assist in finding alternative accommodations.
Please see www.BHDSyndrome.org <http://www.bhdsyndrome.org/conference/ <http://www.bhdsyndrome.org/conference/> > for additional details.

See our "About Us' page for a list of topics that are covered onwww.BHDSyndrome.org.
For more information on "Other hereditary Kidney Cancer Symptoms", please seewww.BHDSyndrome.org.


FibrofolliculomasonNeck.jpg

Many people with BHD have skin manifestestations. This photo shows fibrofolliculomas on the neck. You can see many more photos of skin symptomshere.

This site provides information for those affected by or interested in BHD. Always see medical professionals for all issues regarding your health care.

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